| Needs Survey |
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Needs Survey for Kentucky's "New" Autism Spectrum Disorder WaiverCan you all give me input on the survey (below) regarding autism spectrum disorder needs in order to provide our membership with input to the planning committee for the waiver. It would be good to solicit input from providers (therapists, home health agencies, etc.) and professionals (M.D.'s, Ph.D.'s, SLP's, OT's) in the form of letters or recommendations. A Planning Committee has been formed by the State of Kentucky to study options and services for a new autism specific Medicaid waiver. It is critical that the Autism Society of the Bluegrass membership have input into the services that will be provided under this new waiver. The main meeting for this committee will be a three-day retreat, April 24-26. We would like to have our survey data in the committee's hands by that date. All questions are optional but are designed to help the committee know who we are and what we need in objective terms. Is your child currently receiving services under any of the following waivers or programs? ____ Home and Community Based Waiver (respite, home-based speech or
occupational therapy, etc.) Please indicate which services you believe should be included in the new waiver program. Please place a C beside any service you are currently receiving. ____ Intensive Behavioral Intervention (including discrete trial, verbal behavior, natural environment teaching and pivotal response training.) ____ Consultation Fees ____ Therapeutic Support Staff ____ Materials & Supplies ____ Respite Care: ____ Skilled Nursing (RN) Level ____ Certified Nurse Assistant Level ____ Speech Therapy ____ Occupational Therapy: ____ Sensory Integration ____ Cranio-Sacral ____ OT Aquatics ____ Standard Occupational Therapy to Improve Functioning ____ Other ___________________ ____ Physical Therapy ____ Summer Programming: ____ Recreational Programs ____ Camps (short term, one or two week programs) ____ Therapeutic Programs ____ After-School Programs: ____ Therapeutic Programs ____ Recreational Programs ____ Augmentative Communication Services: ____ Picture Exchange Communication System, training and materials. ____ Communication Boards (Boardmaker) training and materials ____ Electronic Voice Output Devices ____ Other __________ ____ Biomedical Interventions: ____ Medications ____ IVIG Therapy ____ Transfer Factor Therapy ____ Secretin ____ Chelation Therapy ____ Allergy Testing and Dietary Intervention: ____ Testing and Follow-up (Yeast, Gluten, Casein, etc.) ____ Necessary Medications, Supplements and Special Foods ____ Anti-fungal Medications ____ Other _________ ____ Auditory Training Programs: ____ Auditory Integration Training ____ Earobics, FastForward and other auditory therapy ____ Other __________ ____ Vision Therapy Programs: ____ Behavioral ____ Irlen Lens to treat Scotopic Sensitivity ____ Other _________ ____ Art Therapy ____ Music Therapy ____ Social Skills Training ____ Other Programs: ____ Therapeutic Horseback Riding ____ Recreational programs such as gymnastics, swimming, soccer, etc. that fill a sensory, functioning or social purpose. ____ Therapeutic Swimming Program (i.e. Dolan method) ____ Other ________________________________________________________ Some of the above services have state licensing requirements for providers,
some do not. How do you feel about the type of credentials that provider's
should have in order to be a provider under the new waiver? How do you feel about the quality of services you are being provided at this
time? There are many ways to structure waiver programs. A person may access only one actual "waiver" at a time. One method is to make the waiver or program very specific to the disability and allow access to other medical services through the normal Medicaid program. Doctors, dentists, etc. would still be accessed with regular Medicaid card but disability specific services through the new waiver or program. This allows for a larger pool of providers and would allow children to remain with familiar and established service providers. This is currently the way most people access services through the HCB waiver and standard Medicaid. Another method is to spell out in the waiver exactly what services are to be provided and only those services would be provided. These waivers usually have an annual dollar amount cap and a limited number of "slots". This type of waiver severely limits providers and services. We would appreciate your thoughts on this topic. You may attach additional comments or turn the survey over and write on the back. Please print, complete, and return the survey to:
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